Saturday, October 20, 2012

Clara Jo

Such a tiny precious angel.  She has been through a lot in her little life here on earth.  At 10 months of age she has had to fight for her young life twice.  A few months back she underwent life saving surgery to open the plates in her head to allow for growth of her brain, and while that surgery was successful she has to undergo test on her optic nerve to see if any damage was done.  Now this precious angel is once again fighting for her life.  She has been diagnosed with a rare geneic disorder called "hypophosphatasia" .
This disorder causes brittle bones,  and at her young age she has had eight broken ribs.  Some are healed some are new.  Her momma Danielle took her to the Doctor for what she thought was the beginnings of a cold only to be told it was pnemonia, and then to find out she has this disorder.  What this does is it prevents "mineralazation" to occur, this prevents the calicum that makes the bones strong from going to the bones.  the calicum builds up in the blood.  Making her one very sick little girl.  there are other things that can go wrong but to say her life will be easy is an understatement.  But I know with prayer and Gods hand upon her she will be a blessed little girl.  You see God gave her to Danielle and my son Richard and they will do all within their power to see that she gets the very best treatments known. Danielle has not left her side since this all started.  She was the same when her brother was sick.  Danielle will love and nurture this precious baby.  Clara Jo is in Gods healing hands and God put her into Danielles and Richies hands to raise to become a blessing to this family.  All Praise to God the great healer and to the Blessing that God gave us  in Little Clara Jo.

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